Together with my parents I tried to find different treatment methods like other drugs or herbs, but everything only had a temporary effect and I was not cured. The destruction of my lungs continued.
At the start I was having eight drugs (and the injections) and then it increased to 35. 35 drugs, plus the injections! Then, when my condition was stabilising, it started declining. From 35 it became 17. And that's where I am now… 17 tablets and I take them every day!
Having received treatment for regular TB, I was to be discharged from the hospital and start the continuation phase of the treatment. And as soon as I began the next phase, I realized that things were not going to be as easy as I thought.
Phumeza (20) was diagnosed with XDR TB in June 2010. She had to suspend her studies at the Cape Town technical college to be admitted to hospital…
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Athong lives in Manipur, India. He was diagnosed with TB in 2005 and MDR TB in 2010. He is a driver but had to quit his job when his health deteriorated.
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Opera Churchill is a 34 year old and has multidrug-resistant tuberculosis. He is currently being treated by MSF in Kitgum, Uganda.
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Grace Lamwaka has had to suspend her agriculture studies in Kitgum, Uganda because she is currently being treated…
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Lucky is 28 years old and was diagnosed with XDR TB in June 2011; she is HIV negative and never had TB before. She is an NHS patient in the United Kingdom.
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Mariam Davtyan (21) lives in Armenia was diagnosed with MDR TB in 2009. Her blog is also published in Russian here.
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Mother of five in the Shiselweni Region of Swaziland. She began MDR-TB treatment in February 2011. Her daughter, Colisile, is also blogging.
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In December 2009 I was diagnosed with TB. The Doctors suggested that it was likely that I picked it up when I was travelling in South Africa…
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Madan is 36 and from Mumbai, India. He has been on treatment for MDR-TB for 9 months and for HIV for 3 years and 4 months..
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38 year old woman in Emakhweleni, a small community in the Shiselweni Region of Swaziland. She began MDR-TB treatment in November 2010.
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Mildred is from the Philippines and has recently recovered from XDR TB. She tells her story here.
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Nodjindo is from Central African Republic and is blogging in French. She is waiting for drugs to arrive so she can start her treatment for MDR TB.
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A 25 year old from Swaziland, Colisile began her MDR-TB treatment In January 2011. Her mother, Zanele, is also blogging.
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TB&ME provides patients with an online platform to tell the world in their own words about living with MDR-TB. Patients living around the world will share their experiences, highlighting MDR-TB as a global problem in need of serious attention. TB&ME is also a place where patients can share their experiences with others who might be in the same position.
“There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something better tomorrow” , Indeed a strong quote from Orison Swett Marden (American writer) on which I lived. I was on the second line of treatment which had a massive regime. The drugs were; oral tablets; pyrazinamide, cyloserine, ciprofloxacin, prothionamide, and intravenous [...]
hickman line, hope, resistance, Side effects, steroids, treatment
I’m on different drugs now and it’s better. My greatest fear is that, after finishing the treatment, I won’t have the capacity to do the things I was doing before. I always have that question mark in my mind. The doctors tell me that I will get all my strength back and do whatever I [...]
In the end I will go back to Gulu. That is the place I know very well. I lived there so many years. That is my plan. I lived there during the conflict and didn’t leave until last year -16th of May. That is the day I came to Kitgum, because of my illness. That [...]
My parents called me lucky and I guess it’s absolutely true to me – “I am lucky”. You may be wondering what makes me feel lucky? It’s the feeling that I am alive and going to be with my family, my loved ones. That makes me feel lucky and very happy. If I flashback the [...]
I’m happy I can see a great change. There’s a great change in me. People have been saying I look strong and I am strong! I can do a lot of things!! I’ve been running, I’ve been walking, and today, even though I have worked tirelessly, I don’t feel any pain. Not in my chest, [...]
